Blue Faery: The Adrienne Wilson Liver Cancer Association
Background
Overview
Blue Faery: The Adrienne Wilson Liver Cancer Association is a nonprofit organization dedicated to preventing, treating, and curing primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education, and advocacy. Founded in 2002 by Andrea Wilson Woods in memory of her sister, Adrienne, who passed away from HCC at age 15, the organization aims to improve the quality of life for HCC patients and support their caregivers.
Mission and Vision
The mission of Blue Faery is to prevent, treat, and cure primary liver cancer through research, education, and advocacy. The organization envisions a world where liver cancer no longer exists, striving to eliminate the disease through comprehensive efforts in research and patient support.
Primary Area of Focus
Blue Faery focuses on Hepatocellular Carcinoma (HCC), the most common type of primary liver cancer, accounting for over 90% of cases worldwide. The organization is committed to advancing scientific understanding, improving patient outcomes, and raising awareness about liver cancer.
Industry Significance
As a leading advocacy group for HCC in the United States, Blue Faery plays a crucial role in supporting patients, educating the public, and fostering research initiatives. Its efforts contribute significantly to the global fight against liver cancer, addressing a critical health challenge with rising incidence rates.
Key Strategic Focus
Core Objectives
- Research Advancement: Accelerate the acquisition and application of scientific understanding to advance the diagnosis, treatment, prevention, and cure of HCC.
- Public Education: Educate the public on the causes, symptoms, treatment options, and prevention of HCC through lectures, literature, and the use of Adrienne Wilson’s personal story.
- Advocacy: Increase influence with private and public organizations to achieve Blue Faery’s goals and raise awareness among the general public to garner support for its mission.
Specific Areas of Specialization
- Patient Support: Providing comprehensive patient education through resources like the Patient Resource Guides for Liver Cancer, available in multiple languages.
- Community Engagement: Hosting an online Liver Cancer Community for patients and caregivers to support each other throughout their cancer journey.
- Public Awareness Campaigns: Conducting initiatives like the "Love Your Liver" campaign to educate high-risk, underserved populations about liver disease and cancer prevention.
Key Technologies Utilized
- Digital Platforms: Utilizing online forums and resources to disseminate information and foster community support.
- Educational Materials: Developing and distributing multilingual educational materials to reach diverse populations.
Primary Markets or Conditions Targeted
- Hepatocellular Carcinoma (HCC): Focusing on the prevention, treatment, and cure of HCC.
- High-Risk Populations: Targeting communities with higher rates of liver cancer, including Asian Americans, Pacific Islanders, Hispanics/Latinos, African Americans, and American Indians/Alaska Natives.
Financials and Funding
Funding History
Blue Faery has experienced significant growth in recent years, surpassing $1 million in revenue in 2023 while maintaining profitability.
Recent Funding Rounds
Specific details about recent funding rounds are not publicly disclosed.
Notable Investors
The organization has received support from various corporate partners, including AstraZeneca, Bayer, Eisai, Elevar Therapeutics, Exelixis, Genentech, and Merck.
Intended Utilization of Capital
Funds are utilized to support research initiatives, develop educational materials, conduct public awareness campaigns, and provide patient support services.
Pipeline Development
Key Pipeline Candidates
As a nonprofit organization, Blue Faery does not develop pharmaceutical products but focuses on supporting research and providing educational resources.
Stages of Clinical Trials or Product Development
Blue Faery collaborates with researchers and institutions to support the advancement of HCC treatments, including participation in clinical trials and dissemination of research findings.
Target Conditions
The primary focus is on Hepatocellular Carcinoma (HCC).
Relevant Timelines for Anticipated Milestones
Specific timelines for research milestones are not publicly disclosed.
Technological Platform and Innovation
Proprietary Technologies
Blue Faery does not develop proprietary technologies but leverages existing platforms to disseminate information and support patients.
Significant Scientific Methods
- Educational Workshops: Conducting live, virtual workshops to educate the public about HCC.
- Community Engagement: Utilizing online forums and resources to foster community support.
AI-Driven Capabilities
While Blue Faery does not develop AI-driven technologies, it collaborates with organizations that utilize such technologies to enhance patient care.
Leadership Team
Key Executive Profiles
- Andrea Wilson Woods: President, Founder, and Director. Andrea founded Blue Faery in memory of her sister, Adrienne, who passed away from HCC at age 15. She oversees the organization's strategic direction and operations.
- Monique Beatty: Director, Treasurer, and Secretary. Monique contributes to the organization's financial oversight and strategic planning.
- Matthew Loxton: Director. Matthew provides strategic advice on healthcare improvement and policy.
- Sarah Schiltz: Director. Sarah contributes to the organization's governance and strategic initiatives.
- Jen Peters: Director. Jen joined the board in 2024, bringing additional expertise to the organization's leadership.
Leadership Changes
- Jen Peters: Appointed as a new board director in 2024.
Competitor Profile
Market Insights and Dynamics
The liver cancer advocacy landscape includes several organizations dedicated to supporting patients and advancing research. Key competitors include the American Liver Foundation, the Community Liver Alliance, and the Global Liver Institute. These organizations offer similar services, such as patient education, support communities, and research funding.
Competitor Analysis
- American Liver Foundation: Addresses all liver diseases, providing education, advocacy, and support services.
- Community Liver Alliance: Based in Pittsburgh, PA, supports the community through liver disease awareness, prevention, education, research, and advocacy.
- Global Liver Institute: A nonprofit advocacy group formed by patients, operating globally to improve the lives of individuals and families impacted by liver disease.
Strategic Collaborations and Partnerships
Blue Faery has established partnerships to enhance its mission:
- Perthera, Inc.: In 2018, Blue Faery partnered with Perthera to provide liver cancer patients with therapeutic treatment options precisely matched to their individual cancers.
- CURE Media Group: In 2018, Blue Faery joined the Strategic Alliance Partnership program with CURE Media Group to raise awareness and advance research for liver cancer.
- Maranda Curtis: In 2022, award-winning singer and songwriter Maranda Curtis partnered with Blue Faery to promote liver cancer prevention in the African American community through the "Love Your Liver" campaign.
- Elevar Therapeutics: In 2025, Elevar Therapeutics joined Blue Faery's Benefactors Council, supporting HCC research, educational programs, and patient advocacy events.
Operational Insights
Blue Faery differentiates itself through its dedicated focus on HCC, personalized patient support, and culturally inclusive educational programs. Its partnerships with various organizations and individuals enhance its capacity to fulfill its mission effectively.
Strategic Opportunities and Future Directions
Strategic Roadmap
Blue Faery aims to expand its research initiatives, enhance patient support services, and increase public awareness campaigns. The organization plans to strengthen existing partnerships and explore new collaborations to further its mission.
Future Business Directions
The organization seeks to broaden its
