The Breath of Life Foundation is a nonprofit organization dedicated to enhancing the quality of life for individuals battling cystic fibrosis (CF). Established in 2016, the foundation focuses on providing financial assistance to CF patients and their families, covering expenses such as medications, treatments, nutritional supplements, medical equipment, utilities, travel, lodging, and other ancillary costs. By addressing these financial burdens, the foundation aims to alleviate some of the challenges associated with managing cystic fibrosis.
Key Strategic Focus
The foundation's primary objective is to bridge the financial gaps faced by CF patients and their families. Collaborating with cystic fibrosis centers in Green Bay, Milwaukee, and Madison, the organization ensures that funds are directed to those in need. Additionally, the foundation is committed to developing educational programs that promote healthy lifestyles, treatment compliance, insurance literacy, and financial stability for CF patients, thereby fostering a more productive life despite the challenges of the disease.
Financials and Funding
In 2022, the Breath of Life Foundation reported revenues of $92,363 and expenses totaling $46,182. The organization's net assets stood at $192,243, reflecting a stable financial position. The foundation's funding primarily comes from contributions and program services, with a focus on maintaining financial health to support its mission effectively.
Leadership Team
The foundation is led by a dedicated team of volunteers who serve without compensation:
- Geralyn Hartman: President
- Sherry Eisch: Treasurer
- Stephanie Willems: Secretary
- Tyler Arkens: Director of Business Development
- Don Noskowiak: Director of Strategic Planning
- Suzanne Kowalczyk: Medical Review
Their collective expertise and commitment drive the foundation's initiatives and strategic direction.
Competitor Profile
In the nonprofit sector focused on cystic fibrosis support, several organizations operate with similar missions:
- Cystic Fibrosis Foundation: A leading organization dedicated to funding research and providing support for CF patients.
- Boomer Esiason Foundation: Focuses on raising awareness and funding for CF research and patient support.
- Mauli Ola Foundation: Utilizes surfing and ocean-based activities to support individuals with genetic disorders, including CF.
These organizations contribute to the broader ecosystem of support for CF patients, each with unique approaches and programs.
Strategic Collaborations and Partnerships
The Breath of Life Foundation collaborates closely with cystic fibrosis centers in Wisconsin to ensure that financial assistance reaches those in need. These partnerships are instrumental in identifying patients who require support and in developing programs that address the multifaceted challenges of living with CF.
Operational Insights
The foundation's strategic positioning within the CF support landscape is characterized by its direct financial assistance model and educational initiatives. By focusing on both immediate financial relief and long-term empowerment through education, the organization differentiates itself from competitors that may primarily focus on research funding or advocacy.
Strategic Opportunities and Future Directions
Looking ahead, the Breath of Life Foundation aims to expand its reach by forming additional partnerships with CF centers nationwide. Developing comprehensive educational programs that address emerging challenges in CF care, such as new treatment modalities and insurance complexities, presents an opportunity to further support the CF community. Leveraging technology to streamline assistance applications and program delivery could enhance operational efficiency and impact.
Contact Information
- Website: www.breathoflifefndn.org
