Epilepsy Foundation Central & South Texas: Comprehensive Market Research Report

Background

Overview

The Epilepsy Foundation Central & South Texas (EFCST) is a non-profit organization established in 1993, dedicated to enhancing the quality of life for individuals affected by epilepsy across 79 counties in Central and South Texas. Serving a population of over 160,000 individuals with epilepsy, EFCST is committed to dispelling myths and misunderstandings about the condition, empowering those affected to lead full and meaningful lives.

Mission and Vision

• Mission: To improve the lives of people affected by epilepsy through education, advocacy, research, and connection.

• Vision: A world without epilepsy and lives free from seizures.

Primary Area of Focus

EFCST focuses on providing comprehensive support and services to individuals with epilepsy, including medical care, educational programs, advocacy, and community engagement.

Industry Significance

As a regional affiliate of the Epilepsy Foundation National Organization, EFCST plays a pivotal role in addressing the unique challenges faced by the epilepsy community in Central and South Texas, contributing significantly to the broader mission of the Epilepsy Foundation.

Key Strategic Focus

Core Objectives

• Education: Enhancing public understanding of epilepsy to reduce stigma and promote inclusivity.

• Advocacy: Championing policies that improve access to care and support for individuals with epilepsy.

• Research: Supporting and disseminating research initiatives aimed at better understanding and treating epilepsy.

• Community Connection: Building a supportive network for individuals affected by epilepsy through various programs and services.

Specific Areas of Specialization

• Seizure Clinics: Offering specialized medical care for individuals without access to epilepsy specialists.

• Support Services: Providing counseling, support groups, and emergency medical assistance programs.

• Educational Programs: Conducting training sessions for schools, first responders, and community organizations on seizure recognition and first aid.

Key Technologies Utilized

EFCST employs a range of technologies to enhance service delivery, including telemedicine platforms for remote consultations, data management systems for patient records, and online training modules for educational programs.

Primary Markets or Conditions Targeted

The organization primarily serves individuals with epilepsy across 79 counties in Central and South Texas, focusing on underserved populations who lack access to specialized care.

Financials and Funding

Funding History

As a 501(c)(3) non-profit organization, EFCST relies on a combination of donations, grants, and fundraising events to support its operations. Specific details regarding total funds raised and recent funding rounds are not publicly disclosed.

Notable Investors

EFCST's funding sources include individual donors, corporate sponsors, and philanthropic foundations. Notable supporters have included organizations such as UCB, Inc., Visionworks, and Equitable Advisors.

Intended Utilization of Capital

Funds are allocated towards program expenses, administrative costs, and fundraising efforts, with a significant portion directed towards direct services for individuals with epilepsy. In the fiscal year 2019, the organization reported program expenses of $1,715,956.

Pipeline Development

As a non-profit organization, EFCST does not have a product development pipeline. However, it continually develops and refines its programs and services to meet the evolving needs of the epilepsy community.

Technological Platform and Innovation

Proprietary Technologies

EFCST utilizes proprietary data management systems to track patient information and service delivery, ensuring efficient and effective care.

Significant Scientific Methods

The organization employs evidence-based practices in its educational programs and support services, incorporating the latest research findings to inform its initiatives.

Leadership Team

Executive Profiles

• Kimberly Martin, CEO: Kimberly Martin serves as the Chief Executive Officer of EFCST. Under her leadership, the organization has expanded its services and outreach efforts.

Board of Directors

The Board of Directors comprises professionals from various sectors, including healthcare, law, and business, who provide strategic guidance and support to the organization. Notable members include:

• Scott Verstuyft, President: UCB, Inc.

• Alison Packard, Vice President: The Packard Law Firm

• Francesca Barajas, Secretary: Visionworks

• Kevin Douglas, Treasurer: Equitable Advisors

• Tracy Biltz, Member: Wildrose Avenue Consulting

• Steven Contreras, Member: SK Life Science, Inc.

• Janine Hornbeak, Member: Christus Santa Rosa

• Kirk Jewasko, Member: LivaNova

• Joshua Merritt, Member: Merritt Plumbing, LLC

• Josue Morales, Member: Twang Partners

• Carl “Tex” Morgan, Member: CDS Global, Inc.

• Joe Ochoa III, Member: Jarco Companies

• Joe L. Rosales, Member: Synchrony Financial

• Traci Smith, Member: Thermo Fisher

• William Taylor, Member: Fresh Texas

• Adam Velez, Member: The Center for Health Care Services

Leadership Changes

In 2024, Sindi Rosales, the long-serving Executive Director, announced her retirement after 30 years with the organization. Kimberly Martin succeeded her as CEO, bringing a wealth of experience to the role.

Competitor Profile

Market Insights and Dynamics

The non-profit sector serving individuals with epilepsy in Texas is characterized by a collaborative environment, with multiple organizations working towards similar goals. EFCST's primary competitors include:

• Epilepsy Foundation Texas: Serving 176 counties across Texas, this organization offers medical clinics, educational programs, and support services.

• Dravet Syndrome Foundation: A national organization focused on raising research funds for Dravet's syndrome and related epilepsies.

Competitor Analysis

• Epilepsy Foundation Texas: With a broader geographic reach, this organization provides similar services, including medical clinics and educational programs.

• Dravet Syndrome Foundation: Specializes in research funding and support for a specific type of epilepsy, complementing the services offered by EFCST.

Strategic Collaborations and Partnerships

EFCST collaborates with various organizations, including UCB, Inc., Visionworks, and Equitable Advisors, to enhance its programs and services. These partnerships provide resources, expertise, and funding to support the organization's mission.

Operational Insights

EFCST differentiates itself through its extensive service area, covering 79 counties in Central and South Texas, and its comprehensive range of services, including indigent seizure clinics, support groups, and educational programs. This broad scope allows the organization to address the diverse needs of the epilepsy community in its region.

Strategic Opportunities and Future Directions

EFCST aims to expand its outreach and impact by:

• Enhancing Digital Platforms: Developing online resources and virtual support groups to reach a wider audience.

• Strengthening Community Partnerships: Building relationships with local businesses and community organizations to support fundraising and awareness efforts.

• Advocacy Initiatives: Engaging in policy advocacy to improve access to care and support for individuals with epilepsy.

Social Media Presence

EFCST maintains an active presence on social media platforms, including Facebook and Twitter, to disseminate information, engage with the epilepsy community, and raise awareness about its initiatives.