Epilepsy Foundation Texas - Comprehensive Analysis Report

Summary

The Epilepsy Foundation Texas is a prominent 501(c)(3) non-profit organization established in 1983, dedicated to enhancing the lives of individuals in Texas affected by epilepsy. Its mission is centered on providing essential medical care, enriching experiences through specialized camps, delivering comprehensive education, and offering crucial support for people with epilepsy. The organization's overarching goal is to ensure that all Texans living with epilepsy, regardless of income, have access to safe, quality, and timely medical care for seizure treatment. Through strategic expansions, it now serves 176 counties across North, Southeast, East, and West Texas, emphasizing a holistic approach to address both the physical and emotional aspects of epilepsy. It is a significant advocate in the field, having been instrumental in the passing of "Sam's Law" in Texas, which mandates seizure recognition and first aid training for public school employees.

1. Strategic Focus & Objectives

Core Objectives

The Epilepsy Foundation Texas focuses on providing community, care, and hope for those affected by epilepsy.

Community: Facilitating statewide support groups and active community engagement to reduce stigma and combat discrimination.

Care: Operating eight epilepsy clinics across Texas to offer comprehensive medical care, diagnostic testing, and prescription assistance at no charge to qualified, uninsured, and underinsured individuals.

Hope: Offering free, specialized camps that emphasize physical exercise, nature immersion, and team-building in a medically supported environment, fostering a sense of normalcy and empowerment.

Advocacy: Championing legislative changes such as "Sam's Law" to improve safety and support for individuals with epilepsy in public spaces.

Specialization Areas

The Foundation specializes in a multi-faceted approach to epilepsy management and support:

Direct Medical Care: Providing access to specialized neurological care, diagnostic services, and medication assistance.

Experiential Programs: Offering unique camp experiences tailored for different age groups, focusing on personal development and peer support.

Education and Training: Delivering vital information on epilepsy and seizure first aid to the public and professionals, aimed at creating a safer environment.

Self-Management Tools: Implementing innovative programs like MINDSET to empower individuals to better manage their condition.

Target Markets

The primary target markets for Epilepsy Foundation Texas are individuals with epilepsy and their families, particularly those who are uninsured or underinsured across its service area of 176 counties in North, Southeast, East, and West Texas. The organization also targets public school employees, caregivers, and the wider community through its educational and advocacy initiatives.

2. Financial Overview

Funding History

The Epilepsy Foundation Texas is a 501(c)(3) not-for-profit organization primarily supported by private donations and state partnerships.

Total Funds Raised to Date: For the fiscal year ending December 2022, total revenue was $1,781,505. In 2023, revenue stood at $1.73 million.

Recent Funding Rounds:

March 2024: Received a $2 million unrestricted grant from MacKenzie Scott's Yield Giving.

Key Investors: MacKenzie Scott's Yield Giving is a significant recent contributor.

Fund Utilization: This substantial award is intended to significantly accelerate the organization's mission of improving the lives of people living with epilepsy.

Impact on Company Growth: The unrestricted nature of the grant provides flexibility to expand programs, reach more individuals, and strengthen operational capabilities, potentially leading to a significant increase in the scale and impact of its services.

Financial Ratios: The organization prides itself on directing 95 cents of every dollar received directly to fund programs and services, demonstrating strong financial efficiency and program focus.

Revenue Breakdown (FY 2022): Contributions accounted for over 100% of reported revenue at $1,778,240, with government grants contributing an additional $580,129. Total expenses for FY 2022 were $2,386,117. In 2023, expenses were $1.95 million.

3. Product Pipeline

Key Products/Services

Medical Care (Clinic Services):

Description: Operating eight epilepsy clinics providing comprehensive medical care, diagnostic testing, and prescription assistance.

Development Stage: Fully operational and established across multiple locations.

Target Market/Condition: Qualified, uninsured, and underinsured individuals with epilepsy in Texas.

Key Features and Benefits: Free access to neurologists, diagnostic services (e.g., EEGs), and medication support, drastically reducing barriers to critical care.

Camps (Camp Spike 'n' Wave®, Kamp Kaleidoscope®, CAMP I.G.N.I.T.E.):

Description: Free, specialized camps for various age groups (8-14, 15-19, and family camps) focusing on physical activity, nature immersion, and team-building in a medically supervised setting.

Development Stage: Established annual programs with a history of successful execution.

Target Market/Condition: Children and adolescents with epilepsy, and their families.

Key Features and Benefits: Fosters independence, builds self-esteem, provides peer support, and offers a safe environment for physical and social development.

Education and Advocacy (Seizure First Aid Certification, "Sam's Law" advocacy, webinars):

Description: Educational programs on epilepsy and seizure first aid, including certifications. Advocacy efforts for legislative changes affecting individuals with epilepsy.

Development Stage: Ongoing and evolving programs, continually adapting to public health needs and legislative opportunities.

Target Market/Condition: General public, public school employees, caregivers, and individuals with epilepsy.

Key Features and Benefits: Increases public awareness, reduces stigma, empowers bystanders to assist during seizures, and influences policy for better support systems.

Support Groups:

Description: Facilitating statewide support groups for individuals and families affected by epilepsy.

Development Stage: Ongoing community initiative.

Target Market/Condition: Individuals with epilepsy and their loved ones seeking emotional and peer support.

Key Features and Benefits: Provides a professional and confidential space for sharing experiences, reducing feelings of isolation, and gaining coping strategies.

4. Technology & Innovation

Technology Stack

Epilepsy Learning Portal:

Core Platform: Online "one-stop-shop" platform.

Proprietary Developments: Contains virtual, live, and on-demand training content specifically curated for epilepsy and seizure awareness education.

Technical Capabilities: Delivers diverse educational modules, accessible remotely, contributing to the initiative of a Seizure Safe Nation.

MINDSET (Managing Information and Decision Support Epilepsy Tool):

Core Platform: A clinic-based program developed in partnership with the University of Texas Health Science Center at Houston (UTHealth) School of Public Health and Harris Health System.

Proprietary Developments: Utilizes a structured approach for individuals with epilepsy to assess and improve self-management behaviors.

Scientific Methodologies: Integrates support from trained community health workers to help users set and achieve personal goals related to managing seizures, medication, and lifestyle.

Technical Capabilities: A data-driven tool that facilitates personalized self-management strategies and tracks progress.

5. Leadership & Management

Executive Team

Chris Justl - Chief Executive Officer (CEO): Leads the Foundation, bringing a personal understanding of the challenges of epilepsy.

Rebecca Moreau - Chief Operating Officer (COO): Joined in August 2012, has directed various initiatives including IT system transitions and clinic administration. Previously served as Interim Chief Executive Officer and Vice President of Operations. Holds a Bachelor of Arts in Psychology from Schreiner University, with over two decades of experience in program management and community engagement.

Dr. Razi Rashid, MD, MPH - Chief Medical Officer and Interim Medical Director of the clinic team: A neurologist with fellowship training in epilepsy from the Cleveland Clinic. Formerly an adjunct professor for Texas Tech Medical School in Amarillo and medical director of the Epilepsy Foundation of West Texas-Amarillo Branch.

Stephanie Phillips Fokas - Vice President of Philanthropy: Responsible for fundraising and development initiatives.

K. Julissa Alejandre - Financial Manager: Oversees financial operations.

Becky French - Clinic Business Manager: Manages the business aspects of the Foundation's clinics.

Suzanne Thomas - Program Director: Directs the various programs and services offered by the Foundation.

Sandra Morrow - Clinic Nurse: Provides direct nursing support within the clinics.

Christy Gurver - Clinic Assistant: Assists with clinic operations and patient support.

Katy McBeth - Grant Manager: Manages grant applications and reporting.

Asuncion Flores - Clinic Coordinator: Coordinates clinic schedules and patient flow.

Tamisha Herd - Clinic Coordinator: Coordinates clinic schedules and patient flow.

Yukthi Kadari - Program Associate - DFW: Supports program initiatives in the Dallas/Fort Worth region.

Stefanie Gilbert - Senior Development Manager: Supports fundraising and development efforts.

Claire Stevens - AP/AR Specialist: Handles accounts payable and receivable.

Recent Leadership Changes

Chris Justl assumed the role of Chief Executive Officer (CEO), as discussed in a podcast released in October 2025 (likely recorded in late 2024).

Prior to Justl's appointment, Rebecca Moreau served as Interim Chief Executive Officer. She now holds the position of Chief Operating Officer. These changes reflect a strategic evolution in the organization's leadership structure, bringing new perspectives to drive its mission forward.

6. Talent and Growth Indicators

Hiring Trends and Workforce

The Epilepsy Foundation Texas has a dedicated team of 24 employees. The organization actively seeks passionate individuals and offers internship opportunities, such as for the Mental Wellness Program Assistant role, indicating a commitment to developing future talent and possibly expanding program offerings. Key roles being recruited are often program-related and support the Foundation's mission.

Company Growth Trajectory Indicators

The receipt of a $2 million unrestricted grant from MacKenzie Scott's Yield Giving in March 2024 is a significant indicator of potential growth and expansion. This substantial funding provides the organization with enhanced capacity to scale existing programs, explore new initiatives, and reach a larger population of individuals affected by epilepsy across Texas. The consistently high percentage of funds directed to programs (95 cents of every dollar) suggests efficient operations and a strong focus on impact, which are positive growth indicators.

Employee Sentiment and Culture Insights

While specific formal employee sentiment data is not publicly available, user reviews and testimonials consistently praise the positive impact of the Foundation's programs, particularly the Camp Neuron initiative, and commend the caring approach of the staff and volunteers. This suggests a positive organizational culture driven by a shared mission and dedicated individuals committed to serving the epilepsy community.

Company Size and Expansion Metrics

With 24 employees, the organization manages a broad service area covering 176 counties. The addition of significant grant funding provides a clear pathway for expanding its reach and the depth of its services, potentially leading to an increase in staff to support these efforts.

7. Social Media Presence and Engagement

Digital Footprint

The Epilepsy Foundation Texas maintains an active and informative digital footprint across multiple social media platforms, serving as key channels for communication, awareness, and engagement.

Facebook: Regularly updated with organizational news, event promotion, educational content, and community stories.

Twitter/X: Utilized for timely updates, advocacy messages, and sharing relevant news within the epilepsy community.

LinkedIn: Focuses on professional networking, partnership announcements, and organizational updates.

YouTube (Epilepsy EFTX):

Content Volume: Features 122 videos and has 135 subscribers.

Recent Content: Includes the "Epilepsy Unplugged" podcast, discussions on pregnancy and epilepsy, caregiving, camp experiences, and clinic services.

Thought Leadership: The "Epilepsy Unplugged" podcast (launched in October 2025, likely recorded earlier) aims to foster real conversations about living with epilepsy, providing expert insights and inspiring stories.

Brand Messaging and Positioning

The organization's brand messaging consistently revolves around "community, care, and hope" for those affected by epilepsy. Its digital content reinforces its commitment to education, advocacy, and direct support, positioning itself as a comprehensive resource for the Texas epilepsy community.

Community Engagement Strategies

Through social media, the Foundation actively engages its community by:

Sharing impactful stories.

Providing educational resources like seizure first aid guides.

Promoting events and programs.

Encouraging dialogue and support among its followers.

Campaigns like the "1 in 26 Campaign" (promoted on affiliate channels) are used to raise awareness about the prevalence of epilepsy.

8. Recognition and Awards

Industry Recognition

The Epilepsy Foundation Texas has received significant recognition for its operational excellence and program effectiveness:

Charity Navigator Rating: Achieved a Four-Star rating from Charity Navigator, indicating strong financial health, accountability, and transparency. This includes a perfect score for independent board members and robust financial oversight.

Top-Ranked Houston Charity: Recognized in a 2019 Houston Chronicle article as one of the top-ranking Houston charities, based on its 95.1% rating for directing funding to programs and services.

Affiliate of the Year: Awarded "Affiliate of the Year" in 2001, 2007, and 2008 by the national Epilepsy Foundation.

Standards of Excellence Award: Received the "Standards of Excellence" award in 2009, highlighting its commitment to high operational standards.

9. Competitive Analysis

Major Competitors

Epilepsy Foundation Central & South Texas (EFCST):

Company Overview: Established in 1993, EFCST is another significant non-profit organization serving individuals with epilepsy.

Focus Areas: Offers a range of services similar to Epilepsy Foundation Texas, including indigent seizure clinics, social case management, information and referral, outreach and support services, education, employment preparation, and summer youth opportunities.

Technological Capabilities: While specific details on EFCST's technology stack are not readily available, it likely employs standard digital platforms for outreach and service delivery, similar to other non-profits in the health sector.

Notable Achievements: Serves over 130,000 adults and children across 79 counties in Central and South Texas, demonstrating a significant regional impact.

Competitive Positioning: EFCST is a direct regional competitor, serving a distinct but overlapping geographical area within Texas. Its long-standing presence and comprehensive service offerings position it as a strong local alternative or complement to the state-wide efforts of Epilepsy Foundation Texas. The competitive landscape suggests a shared mission but necessitates strategic differentiation and collaboration to meet the vast needs of the state.

10. Market Analysis

Market Overview

Epilepsy is a widespread neurological condition affecting a significant portion of the population, with one in ten people experiencing a seizure in their lifetime and one in 26 developing epilepsy. Despite its prevalence, epilepsy remains a largely hidden and stigmatized disease, often leading to social isolation and significant challenges for patients and their families. This creates a critical market need for organizations that provide comprehensive support, advocacy, and accessible medical care.

Growth Potential

The growth potential for epilepsy support organizations in Texas is substantial due to:

High Prevalence: The significant number of individuals affected by epilepsy ensures a continuous demand for services.

Underinsured and Uninsured Populations: A large segment of the population lacks adequate access to specialized medical care, presenting a consistent need for subsidized or free clinic services.

Increasing Awareness: Ongoing efforts to educate the public and reduce stigma can increase the number of individuals seeking support.

Technological Advancements: Leveraging digital platforms for education and self-management tools can extend reach and impact.

Key Market Trends

Telehealth and Digital Health Solutions: Growing adoption of virtual care and online platforms for education and self-management, as exemplified by the Epilepsy Learning Portal and MINDSET program.

Patient Empowerment: Increased focus on patient self-management and personalized care plans, empowering individuals to take a more active role in managing their condition.

Integrated Care Models: A move towards more holistic care that addresses not only medical needs but also psychological, social, and educational aspects of living with epilepsy.

Legislative Advocacy: Continued efforts to influence policy and secure better protections and resources for individuals with epilepsy.

Market Challenges and Opportunities

Challenges:

Stigma and Discrimination: Overcoming societal misconceptions and biases associated with epilepsy remains a major hurdle.

Funding Dependency: Reliance on donations and grants can lead to financial fluctuations.

Geographic Disparities: Ensuring equitable access to services across a large state like Texas, particularly in rural areas.

Healthcare Access: Addressing the needs of uninsured and underinsured populations requires continuous resource allocation.

Opportunities:

Strategic Partnerships: Collaborating with healthcare systems, universities, and other non-profits to expand reach and services.

Technological Innovation: Further developing and deploying digital tools for education, support, and self-management.

Advocacy Impact: Leveraging past successes like "Sam's Law" to push for further legislative improvements.

Community Engagement: Building stronger community ties to foster greater understanding and support for individuals with epilepsy.

11. Strategic Partnerships

Partner Organization: University of Texas Health Science Center at Houston (UTHealth) School of Public Health and Harris Health System.

Nature of Partnership: This is a collaborative effort to administer the MINDSET (Managing Information and Decision Support Epilepsy Tool) program.

Strategic Benefits: The partnership leverages academic and healthcare expertise to develop and implement a clinic-based program that empowers individuals with epilepsy to improve their self-management behaviors. It enhances the scientific rigor and effectiveness of the Foundation's self-management support initiatives, and provides direct access to patient populations through the Harris Health System.

Collaborative Achievements: The successful deployment and ongoing utilization of the MINDSET program, which helps individuals set and achieve personal goals for managing seizures, medication, and lifestyle with the support of trained community health workers.