epilepsy-queensland

Epilepsy Queensland

Epilepsy Queensland is a non-profit organization based in Woolloongabba, Queensland, dedicated to providing comprehensive support, education, and advocacy for individuals living with epilepsy and their families. It plays a vital role in raising epilepsy awareness and offering specialized resources for improving the quality of life for those affected.

Vision and Impact

Epilepsy Queensland aims to be a beacon of hope for individuals impacted by epilepsy, adhering to principles of transparency, agility, and accountability. Registered under the Associations Incorporation Act (1981) and with the Australian Charities and Not-for-profits Commission, the organization enjoys Public Benevolent Institution status, allowing it to offer tax-deductible benefits.

Governance and Leadership

Epilepsy Queensland's governance framework includes a skills-based Board ensuring strategic decisions are aligned with its mission. Key leaders are:

• Chris Dougherty: Chief Executive Officer, bringing over 15 years of experience in disability, mental health, and profit-for-purpose sectors.

• Sandi Rodiger: Head of Service Delivery, with extensive experience in community services and healthcare, leads the Living Well Team.

• Matthew Shortus: Head of Commercial and Supporter Experience, with a decade of expertise in fundraising and marketing in the NFP sector, focuses on enhancing fundraising capabilities and strategic growth.

• The Board includes individuals with diverse backgrounds, such as Sam Bryce, Chair, with a personal connection to epilepsy.

Services and Outreach

Epilepsy Queensland provides personalized epilepsy management plans, educational training, support groups, and the Epilepsy Smart Australia Program. It emphasizes:

• Delivering high-quality customer experiences through its Quality Management System (QMS) adhering to Human Services Quality Standards and NDIS Practice Standards.

• Raising community awareness and reducing stigma via advocacy efforts, events like Walk for Epilepsy, and initiatives such as Make March Purple.

Community Engagement and Partnerships

Epilepsy Queensland fosters involvement through volunteering, fundraising, and corporate partnerships. Sports ambassador Wally Lewis enhances its visibility. The organization’s community-driven approach encourages inclusivity and fosters strong relationships with stakeholders and the epilepsy community.

Current Initiatives and Future Prospects

Epilepsy Queensland is participating in innovative projects such as utilizing smart watches for seizure detection. It is committed to expanding its reach and improving service delivery, including efforts to establish support teams in major Queensland cities. For more details, stakeholders are encouraged to connect via their helpline or through social media platforms.

Competitive Landscape

1. Epilepsy Foundation of Australia

• Location: Victoria, Australia

• Services: Offers comprehensive support, education, and training. Initiates programs like the Epilepsy Smart Australia program for a national epilepsy plan.

• Contact:

• Phone: (03) 8809 0600

• Email: epilepsy@epilepsyfoundation.org.au

2. Epilepsy Centre

• Location: South Australia and Northern Territory

• Services: Provides counseling, training, advocacy, and community awareness initiatives like "Walk For Epilepsy."

• Contact:

• Phone: 1300 850 081

• Email: enquiries@epilepsycentre.org.au

• Address: 274 Grange Road, Flinders Park SA 5025

3. BrainLink Services

• Role: Supports families with brain disorders, including epilepsy, offering resources and guidance.

• Contact:

• Phone: 1800 677 579

• Email: admin@brainlink.org.au

• Address: 201/44 Lakeview Drive, Scoresby, Victoria

4. Parkinson's NSW

• Focus: Primarily on Parkinson's, offering relevant services for neurological conditions like epilepsy.

• Contact:

• Phone: 1800 644 189

• Email: pnsw@parkinsonsnsw.org.au

• Address: Macquarie Hospital Building 17, 51 Wicks Road, North Ryde NSW 2113

Industry Context and Insights

• Technology and Resources: Competitors are leveraging online platforms and community events to enhance outreach.

• Community Engagement: Fundraising events and educational programs are critical tools for awareness promotion in this sector.

Understanding these competitive dynamics helps Epilepsy Queensland refine its strategic positioning, enhance offerings, and boost stakeholder engagement.