Lupus Foundation of America Texas Gulf Coast Chapter Inc. Market Research Report

Background

Overview

The Lupus Foundation of America Texas Gulf Coast Chapter Inc. is a nonprofit organization dedicated to improving the quality of life for individuals affected by lupus in the Texas Gulf Coast region. Established in 1984, the chapter serves 49 counties, providing education, support, and advocacy to those impacted by lupus.

Mission and Vision

The chapter's mission is to advocate for patients to receive high-quality care, educate community members and healthcare professionals about lupus, and fund research toward finding a cure. Their vision is to solve the mystery of lupus and provide caring support to those who suffer from its impact.

Primary Area of Focus

The chapter focuses on:

Advocacy: Ensuring patients have access to high-quality healthcare throughout their lupus journey.

Education: Educating community members and healthcare professionals to shorten the time to diagnosis.

Research: Funding research initiatives aimed at finding a cure for lupus.

Industry Significance

As part of the Lupus Foundation of America, the Texas Gulf Coast Chapter contributes to the national effort to improve the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

Key Strategic Focus

Core Objectives

Advocacy: Support patients in accessing high-quality healthcare, including referrals, appointment support, and direct patient advocacy.

Education: Educate community members and healthcare professionals about lupus symptoms to shorten the time to diagnosis.

Research: Fund research initiatives toward finding a cure for lupus.

Specific Areas of Specialization

Patient Support Services: Providing information and referral lines, support groups, and patient advocacy.

Educational Programs: Offering seminars, workshops, and lectures on lupus management and treatment.

Community Outreach: Engaging in public awareness campaigns and health fairs to educate the community.

Key Technologies Utilized

The chapter utilizes digital platforms for education and support, including virtual support groups and online resource directories.

Primary Markets or Conditions Targeted

The chapter primarily targets individuals affected by lupus in the Texas Gulf Coast region, focusing on underserved communities to ensure equitable access to resources and support.

Financials and Funding

Funding History

The chapter has demonstrated financial transparency by publishing annual audit reports and tax forms, ensuring accountability to donors and stakeholders.

Total Funds Raised

In the fiscal year ending September 30, 2023, the chapter reported total revenues of $434,198.

Recent Funding Rounds

Specific details about recent funding rounds are not publicly disclosed.

Notable Investors

As a nonprofit organization, the chapter relies on donations from individuals, corporate sponsors, and grants from foundations. Specific donor information is typically confidential.

Intended Utilization of Capital

Funds are allocated toward patient support services, educational programs, community outreach, and research initiatives aimed at finding a cure for lupus.

Pipeline Development

Key Pipeline Candidates

The chapter collaborates with research institutions and partners to fund and support research initiatives focused on lupus. Specific pipeline candidates are not publicly detailed.

Stages of Clinical Trials or Product Development

The chapter supports various stages of research, from early-stage studies to clinical trials, in partnership with organizations like Hope Biosciences.

Target Conditions

The primary focus is on lupus, an autoimmune disease that affects various organs and systems in the body.

Relevant Timelines for Anticipated Milestones

Specific timelines for research milestones are not publicly disclosed.

Technological Platform and Innovation

Proprietary Technologies

The chapter does not develop proprietary technologies but leverages existing platforms to deliver services.

Significant Scientific Methods

The chapter supports research that employs various scientific methods, including clinical trials and laboratory studies, to advance lupus understanding and treatment.

AI-Driven Capabilities

There is no specific information indicating the use of AI-driven capabilities within the chapter's operations.

Leadership Team

Executive Profiles

Anne Marie Blacketer, CFRE: Chief Executive Officer. Anne Marie has been with the chapter for several years, leading initiatives to expand programs and services for lupus patients.

Board of Directors

Mrs. Naana Danquah Jefferson: Chair. Affiliated with SLB.

Ms. Cynthia Barclay: Treasurer. Affiliated with Quality Dialysis.

Mr. Biruh Workeneh, MD: Secretary. Affiliated with MD Anderson.

Mr. David Wilson: Board Member. Affiliated with Accenture.

Professor Jordan O. Williams: Board Member. Affiliated with Texas Southern University.

Mrs. Lynn Blandford: Board Member. Affiliated with Sequitur Energy.

Ms. Medha Airy, MD: Board Member. Affiliated with Baylor College of Medicine.

Mr. Richard Blandford: Board Member. Affiliated with Private Equity.

Leadership Changes

Specific details about recent leadership changes are not publicly disclosed.

Competitor Profile

Market Insights and Dynamics

The nonprofit sector focused on lupus support in the Texas Gulf Coast region is competitive, with multiple organizations vying for funding and community engagement.

Competitor Analysis

Lupus Foundation of America Lone Star Chapter: Serves over 200 counties in Texas, offering support and educational programs.

Lupus Foundation of America Greater Ohio Chapter: Focuses on research, education, and support services for lupus patients.

Strategic Collaborations and Partnerships

The chapter collaborates with county health departments, community clinics, and other health advocacy nonprofit organizations to enhance service delivery.

Operational Insights

The chapter differentiates itself through its comprehensive approach, combining advocacy, education, and research funding to address the multifaceted challenges of lupus.

Strategic Opportunities and Future Directions

Strategic Roadmap

The chapter aims to expand its digital presence to better reach those in need, enhance community engagement, and increase funding for research initiatives.

Future Business Directions

Plans include increasing outreach efforts, enhancing educational programs, and strengthening partnerships with research institutions to accelerate the search for a cure.

Opportunities for Expansion

There is potential to expand services into underserved areas within the Texas Gulf Coast region and to develop new programs addressing emerging needs within the lupus community.