National CMV Foundation Company Profile
Background
The National CMV Foundation is a nonprofit organization dedicated to preventing pregnancy loss, childhood death, and disability caused by congenital cytomegalovirus (CMV). Established in 2014, the foundation focuses on raising awareness, advancing prevention strategies, and advocating for research and policy changes to combat CMV, the leading infectious cause of birth defects and developmental disabilities in the United States.
Key Strategic Focus
The foundation's strategic objectives include:
- Informing: Raising awareness and promoting education about CMV risks and prevention among women of childbearing age.
- Engaging: Conducting targeted outreach with medical professionals to enhance CMV education and connecting affected individuals with appropriate resources.
- Advocating: Increasing community involvement through fundraising, legislation, strategic partnerships, and corporate development to drive behavioral change and improve CMV education.
Financials and Funding
The National CMV Foundation's financial performance over recent years is as follows:
- 2023:
- Revenue: $382,031
- Expenses: $455,965
- Net Assets: $419,643
- 2022:
- Revenue: $280,538
- Expenses: $459,678
- Net Assets: $450,005
- 2021:
- Revenue: $506,369
- Expenses: $273,642
- Net Assets: $652,710
The foundation's primary revenue sources include contributions, gifts, grants, and fundraising events. Notably, in 2023, fundraising events generated $362,626, while contributions and grants amounted to $171,938.
Programs and Initiatives
The foundation implements several key programs:
- CMV Community Alliance: A volunteer program supporting individuals passionate about eliminating congenital CMV through community engagement, awareness, and fundraising efforts.
- Education & Outreach: Focused on educating three target audiences—people of childbearing age, childcare providers, and healthcare providers—about prevention strategies to mitigate CMV transmission risks.
- Legislative Support: Advocating for CMV education and newborn screening legislation at state and federal levels to improve early detection and intervention.
- Care to Talk: An online support group for families affected by congenital CMV, providing peer-to-peer support and shared experiences.
Leadership Team
The foundation's leadership comprises dedicated professionals:
- Stephanie English: Board President with over 22 years of experience in healthcare business operations, focusing on public health, awareness, and universal screening initiatives.
- Mary Uran: Board Chair/President, Managing Director of Compass Pro Bono, and co-founder of Girls on the Run Twin Cities, with a background in public health and nonprofit leadership.
Competitor Profile
Market Insights and Dynamics
Congenital CMV is a significant public health concern, affecting approximately 1 in 200 newborns annually in the United States. Despite its prevalence, awareness remains low, with 91% of women unaware of the virus. This gap underscores the need for increased education, screening, and research funding.
Competitor Analysis
Organizations with similar missions include:
- March of Dimes: Focuses on preventing birth defects and infant mortality through research, education, and advocacy.
- Centers for Disease Control and Prevention (CDC): Provides information and resources on CMV and other congenital infections.
- American Academy of Pediatrics (AAP): Offers guidelines and education for healthcare providers on managing congenital infections.
Strategic Collaborations and Partnerships
The National CMV Foundation collaborates with various stakeholders to strengthen its impact:
- Healthcare Institutions: Partnering with medical centers and universities to advance CMV research and education.
- Legislative Bodies: Working with policymakers to advocate for CMV education and screening legislation.
- Community Organizations: Engaging local groups to raise awareness and support affected families.
Operational Insights
The foundation's strategic considerations include:
- Awareness Campaigns: Implementing targeted marketing and educational initiatives to increase CMV awareness among key demographics.
- Research Funding: Allocating resources to support innovative research projects aimed at CMV prevention, treatment, and intervention.
- Legislative Advocacy: Pursuing policy changes to mandate CMV education and newborn screening at state and federal levels.
Strategic Opportunities and Future Directions
The National CMV Foundation aims to:
- Expand Educational Outreach: Develop and disseminate comprehensive educational materials to reach a broader audience.
- Enhance Research Initiatives: Increase funding for early career researchers and innovative projects related to CMV.
- Strengthen Advocacy Efforts: Build a robust network of advocates to influence policy changes and secure funding for CMV-related programs.
Contact Information
For more information, visit the National CMV Foundation's official website.
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