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sickle-cell-association-of-texas---marc-thomas-foundation

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Company Profile: Sickle Cell Association of Texas Marc Thomas Foundation



Overview


The Sickle Cell Association of Texas Marc Thomas Foundation is a non-profit organization, established in 1997 and headquartered in Austin, Texas, with additional offices in Houston and San Antonio. The foundation, under a 501(c)(3) tax-exempt status, is committed to supporting families affected by sickle cell disease and trait through comprehensive outreach and advocacy efforts.

Mission and Vision


The foundation aims to enhance patient care and research for individuals affected by sickle cell conditions. It envisions a world where people with sickle cell disease and trait receive holistic care throughout their lives, focusing on family-centric services and community involvement to stabilize family units.

Key Services and Programs


  • Holistic Services: Provides comprehensive support to individuals and families, including educational outreach and health screenings.

  • Camp Cell-A-Bration: An engagement event designed to support and involve families impacted by sickle cell disease.

  • Advocacy and Awareness: Conducts events like the annual Sickle Cell Walk to raise awareness and educate the public.


Leadership Team


  • Linda Thomas Wade, President & CEO: A certified community health worker known for her advocacy on platforms like NIH and recognized by the National Forum for Black Public Administrators.

  • Alysian Thomas, JD, Chief Operating Officer & Attorney: Manages legal and operational strategies, participating in national and international sickile cell conventions.

  • Emily O'Shea, LCSW, CCM, Licensed Clinical Social Worker and Certified Case Manager: Specializes in case management with a focus on mental health and social justice.

  • Yesica Martinez, Office Coordinator and Director of Bilingual Services: Ensures bilingual and accessible services for diverse client populations.


Financial Performance and Community Impact


The foundation reported a revenue of approximately $721,000 in 2023 and holds a 3 out of 4-star rating from Charity Navigator, reflecting its strong financial management. The foundation reaches and supports hundreds of families each year while extending its outreach to over 750,000 individuals. It plays a significant role in local and national initiatives such as the Sickle Cell Disease Coalition.

Contact Information


  • Toll-Free Helpline: (844) 994-HOPE (4673)

  • Email: info@sicklecelltx.org

  • Austin Office: (512) 458-9767

  • Houston Office: (713) 534-1712

  • San Antonio Office: (210) 899-3928





Competitor Profile: Sickle Cell Disease Foundation of California (SCDFC)



Overview


Founded in 1957, the Sickle Cell Disease Foundation of California (SCDFC) is the oldest non-profit organization in the U.S. dedicated to supporting individuals and families with sickle cell disease. SCDFC is renowned for its educational, screening, and counseling services, addressing the diverse needs of its clients.

Mission and Impact


SCDFC's mission is to ensure that individuals with sickle cell disease receive the necessary care and compassion. The foundation has contributed to improving survival rates and quality of life through its comprehensive support systems, including educational resources and state-approved programs.

Historical Milestones


SCDFC achieved a pivotal milestone by securing $15 million from the state of California for sickle cell screening and treatment, marking the first such funding. With over sixty years of service, SCDFC continues to advocate for sickle cell disease as a significant genetic health issue in the U.S.

Programs and Services


SCDFC offers free educational and support services to individuals and families affected by sickle cell disease, relying on fundraising and philanthropy to maintain its impact. The foundation encourages community involvement through sponsorship, donations, and volunteer opportunities.

Contact Information


  • Address: 3602 Inland Empire Blvd, Suite C315, Ontario, CA 91764

  • Phone: (909) 743-5226

  • Toll-Free: (877) 288-CURE (2873)

  • Email: info@scdfc.org



Engaging with SCDFC presents opportunities for partnerships and collaboration, leveraging its well-established initiatives and programs for advancing services and support for those with sickle cell disease.
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