Professional Summary
Professional Overview
Deb Discenza is a renowned advocate and leader in the preemie/neonatal care community. As the Co-Founder and Executive Director of the PreemieWorld Foundation Inc., she brings over two decades of industry experience and a steadfast commitment to improving outcomes for premature infants and their families.
Experience Summary
Current Role
As the Co-Founder and Executive Director of PreemieWorld Foundation Inc., Deb is responsible for driving the organization's mission to empower and support families of premature infants. She oversees strategic planning, program development, and community engagement initiatives, working tirelessly to amplify the voice of the preemie community and foster collaborative partnerships with key stakeholders.
Deb also serves in several other influential roles, including Advisory Board Member at The Skylar Project, Board Member and Vice President at Kindred 360, Co-Chair of the Community Engagement Board at the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), and Co-Chair of the iCAN Parent Chapter at iCAN Research. Through these positions, she leverages her expertise to shape policies, advocate for research initiatives, and drive positive change in the neonatal care landscape.
Career Progression
Deb's career has been marked by a steadfast dedication to the preemie community. She previously founded and served as the CEO of PreemieWorld, LLC, a leading resource and support platform for preemie families. Prior to that, she held various leadership roles, including Founder and CEO of Crystal Ball Health, LLC, and Director of Partnership Development for PreemieCare, a division of MOST.
Deb's versatile background also includes experience as a columnist for prestigious publications such as Neonatal Intensive Care and the Council of International Neonatal Nurses, as well as a moderator for the Inspire Preemie Support Forum. She has been a driving force in the industry, consistently advocating for improved care and support for premature infants and their families.
Academic Background
Deb has a strong educational foundation, having completed her studies in various fields. Her breadth of knowledge and commitment to lifelong learning have been instrumental in shaping her successful career.
Areas of Expertise
Deb's expertise spans a wide range of areas within the preemie/neonatal care industry, including community engagement, program development, advocacy, and strategic partnerships. She is a respected thought leader, known for her ability to navigate complex challenges, foster cross-functional collaboration, and drive meaningful change.
Professional Impact
Throughout her career, Deb has made significant contributions to the preemie community. She has spearheaded numerous initiatives, such as the establishment of the Alliance for Black NICU Families, to address disparities in neonatal care and ensure equitable access to resources. Her tireless efforts have earned her recognition as a leading voice in the industry, amplifying the needs and experiences of preemie families.
Conclusion
Deb Discenza's remarkable career and dedication to the preemie/neonatal care community have positioned her as a respected and influential figure. As she continues to lead the PreemieWorld Foundation Inc. and actively engage in a diverse array of advisory and leadership roles, Deb remains committed to driving positive change, fostering collaboration, and empowering families of premature infants to thrive.
